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Author Meder, Margaret.
Title Uncommon beauty : crisis parenting from day one / Margaret Meder.
Pub Info Edina, MN : Beavers Pond Press, 2012.
book jacket
 Falmouth-Children's Room  ECRC J 618.92 Med     WITHDRAWN
Descript xiii, 176 p. : portrait ; 22 cm.
Contents Surviving the first days -- Family and friends -- Hospitals and doctors -- Understanding insurance -- skills -- Caring for yourself -- In-home strategies -- Caring for siblings -- Caring for your marriage -- Final thoughts.
Summary In journal form, arranged by topic and not necessarily by date, this is the author's experience as the mother of a medically fragile child. Meder begins the journal with the birth of her son Evan, who was born with Apert Syndrome, and continues through his 7th year.
Subject Apert syndrome.
Syndromes in children.
Parents of children with disabilities -- Biography.
Craniosynostoses -- Patients -- Biography.
Sons -- United States.
ISBN 9781592984879
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