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Author Rapp, Emily.
Title The still point of the turning world / Emily Rapp.
Pub Info New York : The Penguin Press, 2013.
Rating
book jacket
LOCATION CALL # STATUS 
 Oak Bluffs-Children's  J PARENT 921 RAPP     AVAILABLE
 Barnstable (Sturgis) Adult  B RAP RAP     AVAILABLE
 Bourne-Adult Collection  BIOGRAPHY Rapp     AVAILABLE
 Brewster-Adult Collection  92 RAPP     AVAILABLE
 Chatham-Adult Collection  921 Rap     AVAILABLE
 Falmouth-Adult Collection  616.858845 RAP     AVAILABLE
 Hyannis Adult Collection  BIOGRAPHY Rapp     AVAILABLE
 Truro-Adult Collection  92 RAP     AVAILABLE
 West Tisbury-Adult  HW Memoir RAP     AVAILABLE
Descript 260 pages ; 22 cm.
text rdacontent
unmediated rdamedia
volume rdacarrier
Summary "Like all mothers, Emily Rapp had ambitious plans for her first and only child, Ronan. He would be smart, loyal, physically fearless, and level-headed, but fun. But all of these plans changed when Ronan was diagnosed at nine months old with Tay-Sachs disease, a rare and always-fatal degenerative disorder. Ronan was not expected to live beyond the age of three; he would be permanently stalled at a developmental level of six months. Rapp and her husband were forced to re-evaluate everything they thought they knew about parenting. They would have to learn to live with their child in the moment; to find happiness in the midst of sorrow; to parent without a future. Drawing on a broad range of thinkers and writers, from C.S. Lewis to Sylvia Plath, Hegel to Mary Shelley's Frankenstein, Rapp learns what wisdom there is to be gained from parenting a terminally ill child. In luminous, exquisitely moving prose she re-examines our most fundamental assumptions about what it means to be a good parent, to be a success, and to live a meaningful life"-- Provided by publisher.
Subject Rapp, Emily.
Tay-Sachs disease -- Patients -- Biography.
Terminally ill children -- Family relationships -- Biography.
Genre Large type books.
ISBN 9781594205125 : HRD $25.95
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